Naomi
Williams,
CHES
Parent Ambassador
Courageous Parents Network
Naomi D. Williams is a Life Doula and Grief Coach supporting parents and family caregivers as they navigate the complex systems that come with a life altering medical diagnosis. As the mother of a micro-preemie given a poor prognosis, Naomi models what a good quality of life looks like despite severe neurological impairment and medical complexities. She is an author, an avid traveler who enjoys naps, getting lost in nature, and taking long deep breaths on her yoga mat.
Presenting at the Nexus Summit:
Children and families affected by serious medical conditions face considerable challenges in navigating the medical and psychosocial aspects of complex chronic illness management. They experience anticipatory grief, isolation, a loss of agency and control, a fear of being misunderstood by their child’s medical team, the burden of decision-making and a fear of decisional regret, all while seeking to be a ‘good parent’ to their child. Palliative medicine principles including an emphasis on serious illness communication and clarification of family values have significant positive impacts on…